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@carnes

I have 50% blockage beside the a fib and regurgitation left ventricle. Enlarged heart I can't seem to find a good cardiologist.

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Replies to "I have 50% blockage beside the a fib and regurgitation left ventricle. Enlarged heart I can't..."

Hi, Carnes. You have enough issues, symptoms and signs to raise a high suspicion of primary systemic cardiac amyloidosis, along with the blockage. Even the blockage could be secondary to an Amy.... The A-Fib can be non-valve related, but come from Amy in the sensori-motor nerves between sections of the heart, or between the heart and brain, or in the brain. The enlarged heart is typical (75%) Cardiac AL Amy, especially if the QRS tracing on a 12-lead of either ventricle or atrial wall(s) show low voltage, under .5mv, or <about half what a typical enlarged heart cardiomyopathy will show. If you can, start with a good hematologist. Ask them to run a FreeLiteChain@ and a 12-lead ecg on you, for starters. If you are not sure of the hematologist' expertise, demand that they send the results to a skilled and experienced center such as Mayo-Rochester, Memorial Sloan-Kettering, City of Hope, Brigham & Women's, Etc. Some doctors won't do this, so head out the door and take a vacation in Rochester, Philly, Boston or LA, and check with the experienced center directly. It might be the best vacation you have ever had. Save your life, or at least make it longer.