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Brinsupri and hair thinning

MAC & Bronchiectasis | Last Active: 7 hours ago | Replies (17)

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Profile picture for ingrid1947 @ingrid1947

Yes, I remember hair loss listed as a side effect of Brinsupri in the info. Why I told my pulmonologist I hesitated to take it, along with skin side effects. I have had very thin and dry skin, so not much skin already, dry eyes, and I've lost 20 lbs, over the years since being diagnosed with Bronchiectasis and MAC in 2008. So my hair is about the only normal to me looking thing I have left! I did begin taking it in May and right away noticed skin effects, i.e. dryer, and an acceleration of acetic keratosis and larger ones. In July the skin on my feet started peeling in thick dry places.
No hair loss so far. But I'm not noticing much lung improvement either.

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Replies to "Yes, I remember hair loss listed as a side effect of Brinsupri in the info. Why..."

@ingrid1947
Hi there. Sorry to hear about the side effects you are experiencing from the Brinsupri. I was put on it last March and it made a world of difference for me. It stopped the huge amount of phlegm I was choking on daily. My hair is thick but has always been falling out, and my skin has always been very dry. If these are side effects for me; it is my normal. Are you going to stop taking this med?