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Profile picture for donnagail @donnagail

@ndough I have been through 3 GI's that say the same thing. And none think that diet has anything to do with MC flareups. My guy microbiome is shot. I have had chronic diarrhea 2.5 years. Budesonide did help some, more than 50% but I was still having incontinence issues every month in public. It has also weakened my spinkter muscle to 1 on a scale of 5. I had been very active outdoors, leading hikes, backpacking trips and enjoyed bicycling, and doing really cool stuff with friends. I can no longer do any of that. I am tired of using a WAG bag in the car in front of my husband or sitting on the side of the interstate, other roads, resturants, while shopping, airports, the list goes on and on. My gut microbiome is shot. I spent $3000 last fall on a plan to balance it with a program put together by a functional medicine GI doctor, well known by my primary doctor. I didn't work. I need to go extreme and get the good bacteria back in control of my gut. I see my primary today to discuss the Elemental Diet. I have drank a couple samples of the powder and am pretty sure I can handle it. AI has been dead-on everytime I ask something. It has told me what my docs will probably suggest and it been exactly the lab orders my GI and primary ordered for me, every single time!

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Replies to "@ndough I have been through 3 GI's that say the same thing. And none think that..."

@donnagail If it works for you, then do it! I didn’t say diet causes flareups. After 35 years of flareups, I am aware. One of the major causes is extreme stress. For me it started out as heat stress. Every single summer, never fail, it would come out of remission once the temps went above 90. At that time I had a son just starting first grade so it was impossible for me to avoid going out in the summer heat. As I got older other types of stress came into play and now it just goes in and out on its own. Doesn’t even have to be stress related. Because it is an autoimmune disease, it does worsen with age. In my case, I developed cardiovascular disease from it. Everything else was ruled out for the cause, i.e. not in my family, I’m not overweight, I have normal to low blood pressure, my cholesterol is fine, I am very active and get lots of exercise. But MC will cause it after years of having it. Several years ago, out of the blue, I suddenly had to have AAA bypass, double femoral bypass surgery. And in the middle of surgery I had a heart atttack!