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surgeons who can opeate on mesentery
Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (29)Comment receiving replies
How many scans should be done? I don't have anxiety about any scan. I only worry about what the scan might reveal. I had a routine annual CT-scan without contrast to monitor my kidney stones in 2025 which reported that there might be a SBNET in there. I thought all the labs they checked were over the top ... many hormones levels were "not good." A Dotatate Pet scan confirmed what was already suspected. A NET surgeon wanted a CT-scan with contrast prior to surgery but it was erroneously read as no evidence of SBNET. The NET specialist said there was evidence of a SBNET on all the CT-scans done since 2020.
The NET surgeon wants another CT-scan with contrast in November. The NET specialist also wants it done in November to see if Lanreotide is working. Another Dotatate scan early next year is also in the works.
Is metastatic mesenteric lymph nodes the same as mesentery involvement? There is also one distant metastatic site that lit up on the Dotatate.
Surgery is being recommended but I don't like that option. Surgery sounded like it might be "extensive" when they told me the list of things they might have to remove. Surgical anxiety is my thing especially without knowing precisely what all they might remove. I'm considering surgery but the following link makes me want to wait to see what lanreotide does.
https://pubmed.ncbi.nlm.nih.gov/35639999/
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The entire article is here:
https://academic.oup.com/jcem/article/107/12/3209/6594172
There is too much to digest especially since there is a concern that I will have a small bowel obstruction.
Replies to "@tomrennie How many scans should be done? I don't have anxiety about any scan. I only..."
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@dadcue, you're asking great questions that you should also discuss with your team. How many scans are required will differ from person to person depending on the patient's unique set of circumstances such as findings on previous lab tests and scans, treatments, disease progression, general health status, age, personal preference, etc.
I'm not a doctor, but here is my understanding regarding your question about mesentery involvement. Metastatic mesenteric lymph nodes are related to, but not the exact same as, general mesentery involvement. Metastatic mesenteric lymph nodes mean cancer cells have spread specifically to the lymph nodes inside the tissue that holds your intestines. Mesentery involvement is a broader term that can mean cancer is in those lymph nodes, or spreading directly through the fatty tissue and blood vessels of the mesentery itself. Your cancer team can determine if you have spread only to the lymph nodes in the area or to the mesenery itself.
As you navigate this challenging time of gathering as much information as possible, it can be overwhelming as well as helpful. Working with your cancer specialists to determine what information is applicable to you is an important step as you piece everything together. There's no one size fits all or any clear cut answers (unfortunately).