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Lupron or Not at 76?

Prostate Cancer | Last Active: 12 hours ago | Replies (50)

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Profile picture for michaelcharles @michaelcharles

A bit to unpackage.
In 2022, I had RP at 72, followed by salvage radiation treatment(SRT) w/ short term ADT at 73.
G 9 w/ EPE after surgical path and PSA persistent at 3 mos post-op at .19
Cost: Orgovyx was my ADT. Covered on my Part D at 25% coinsurance. If you are on Medicare Part D, your annual out of pocket should be limited to about $ 2000 per yr
ADT: My short term for G 9 was not consistent with any guidelines at the time, and it appears from reading that length of ADT is variable with different ROs and MOs.
I would consider a 2d opinion from a COE. I was treated at Johns Hopkins.
Results (so far): Undetectable quarterly PSAs at < .02 close to 3 yrs now.
Prognosis: PCa returning at some time; hopefully not for a while; wishfully never. Now 76.
Best wishes for successful treatment.

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Replies to "A bit to unpackage. In 2022, I had RP at 72, followed by salvage radiation treatment(SRT)..."

@michaelcharles
Thanks, this is helpful. My sister manages the office for a team of oncologists so I got a long distance second opinion (she's in NY, I'm in AZ). from two of them. So far their advice has been consistent but no one, including my medical team even mentioned Orgovyx.

To be fair, I have not had the last appointment with the urologist before the treatment begins but am skeptical because I was told he will administer the shots i.e. a possible financial incentive to make a specific recommendation. If he doesn't mention any of the alternatives I learned on this forum, I'm probably going to get a formal second opinion from Mayo Clinic which is close by.