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Anyone had Concurrent Radiation and Chemo Therapies?

Lung Cancer | Last Active: 1 hour ago | Replies (26)

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@mamajite I’ve been referred to a pulmonologist. She ordered another CT scan which indicates that original mass is stable and size mildly decreased. However, upper left lobe nodule increased in size (1.0x1.2 compared to previous 0.6. Pulmonary fibrosis and ground glass opacities improved.
Pulmonologist has prescribed anti fibrotic med (Perfenidone) to hopefully minimize the ongoing fibrosis. Thankfully, I am titrating off of Prednisone. I was on 60 mg for over two months and have titrated gradually to 30 and hope to be off of the steroid by 9/24.
Anybody on anti fibrotic meds? I’ve been told to expect diarrhea, nausea and sun sensitivity.
Onward and upward!

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Replies to "@mamajite I’ve been referred to a pulmonologist. She ordered another CT scan which indicates that original..."

@andycapp I hate taking prednisone, so I am celebrating with you on getting to titrate off of it. perfenidone sounds like it comes with its own challenges, but I hope it will help your breathing. let us know how it goes. hugs!