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Urolithial carcinoma w Sarcomatoid nuclei

Bladder Cancer | Last Active: 1 day ago | Replies (7)

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@debbieanddale There are 3 options to create a new way for urine to leave the body after cystectomy. Neobladder is one and there are folks on this forum who can speak to it better than I.
I had a stoma and wear a pouch. Recovery was non eventful and care has been easy. prepping for life with an ostomy started pre-op in my case when an ostomy nurse marked the optimal place on my belly for the stoma. After the surgery my ostomy nurse trained me on how to take care of changes etc. They also had a clinic available for ongoing support and provided lots of educational materials. The major suppliers also have some good online materials. The Bladder Cancer Advocacy website has a lot of patient oriented educational materials as well.
I’m guessing he has probably had CT scans for the abdomen, chest and pelvis. From what I remember , liver and lungs were areas of concern for metastasis.

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Replies to "@debbieanddale There are 3 options to create a new way for urine to leave the body..."

@141emp Thank you so much for responding! I worried all nights all he had to eat was Mac and cheeze. He doesn't have enough strength to cook for himself. He finally asked for someone to drive him to his treatments so I suggested they pick up food on the way home. I am a fixer and my nurse bell in my head is ringing off the hook! And any help or just a word I am so appreciative off. Thank you for responding..

@141emp Again thank you for sharing.