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@dadcue indeed everything you say make s so much more sense with the nuance. And with what you just said, maybe, just maybe the worst is behind me. And yes I am and just 2 weeks ago was in Zeist visiting family.

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Replies to "@dadcue indeed everything you say make s so much more sense with the nuance. And with..."

@pmrnew

Now I really miss the Netherlands. I lived in Soest but I went to Zeist and Utrecht often. I was either on a bicycle or moped not knowing where I was most of the time. I could easily find my way to the Air Force Base or Soest if I saw a blue sign to Zeist.

You are doing really well being on 2.5 mg so soon. From 3 mg to zero was very difficult for me because of being on prednisone for a long time. I was on prednisone for 12 years to treat PMR and some other things, If it wasn't PMR, it was a prednisone side effect or another autoimmune condition. My starting dose of prednisone after PMR was diagnosed was 35 mg. It took me 10 years to reach 10 mg. I was able to taper off prednisone after a biologic called Actemra (tocilizumab) was started. Things were crazy my last 2 years on prednisone. With help from Actemra, going from 10 mg to 3 mg wasn't so bad but going from 3 mg to zero was a doozy. I needed to go back to 60 mg for a while before I finally made it to zero. Now I have been at zero prednisone for 5 years but I'm still doing a monthly infusion of Actemra.