@vstankie
I have had hair loss since the second month. I have been on Brinsupri 6 months, and my hair loss is noticable now. I called Panther, and they said you have to have round bald spots for it to be alopecia, which is a rare side effect. They didn't connect mine to Brinsupri. I do!
I also have these funny things on my legs. Not blisters, but the skin falls off and there is a raised bump. I did have rashy itch on arms, but that might have been allergy to new skin. Dermatologist had no idea what these were.
I asked Panther and they said, It will take at least 52 weeks for them to disappear. I was very confused by that!
My mucus and cough are the same, maybe worse some days. My Pulmonologist took me off on Friday.
I will see if my hair loss stops , and whatever is on my legs goes away. Maybe cough and mucus would have gotten better on 25mgs, but I don't want side effects to get worse. I've had 3 Mohl surgery for skin cancer already.
Anyway, that's my story on Brinsupri. I must add that I am either allergic, or very sensitive to over 30 drugs, so I guess this is another sensitivity.
I had such hope for this drug. I'm not young. I've had MAC for years, not treated. I'm going to NJH probably in fall. Just started the process this week. I was treated there for two other NTMs. I could handle the drugs then. Now, I don't know.