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Urolithial carcinoma w Sarcomatoid nuclei
Bladder Cancer | Last Active: 13 hours ago | Replies (5)Comment receiving replies
What is a neobladder? Dale can barely type me a message. He has a sub par phone and can't even get service half the time. And he is so sick right now, in pain, that he can barely do anything for himself. That's why I'm fretting is he does not have wonderful support. I too wondered about someone at the center helping him. He needs a dietary consult bc weight is falling off him. How can he ever be in shape to have surgery if he can't get help now? I am beside myself. Thank you two for responding to me. I so appreciate it. Praying for all who have to navigate a journey of this nature. Gotta brush up on my urostomy care! I need something w simple pictures to show him bc he doesn't even know what exactly is about to happen. Where is the first place bladder can usually Mets to?
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@debbieanddale There are 3 options to create a new way for urine to leave the body after cystectomy. Neobladder is one and there are folks on this forum who can speak to it better than I.
I had a stoma and wear a pouch. Recovery was non eventful and care has been easy. prepping for life with an ostomy started pre-op in my case when an ostomy nurse marked the optimal place on my belly for the stoma. After the surgery my ostomy nurse trained me on how to take care of changes etc. They also had a clinic available for ongoing support and provided lots of educational materials. The major suppliers also have some good online materials. The Bladder Cancer Advocacy website has a lot of patient oriented educational materials as well.
I’m guessing he has probably had CT scans for the abdomen, chest and pelvis. From what I remember , liver and lungs were areas of concern for metastasis.