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Just An Update on HG Serous Ovarian Cancer

Gynecologic Cancers | Last Active: 14 hours ago | Replies (90)

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@jenelleseaman I want to thank you from the bottom of my heart for writing to me. I spoke about you to my oncologist/surgeon and his cancer team. They were amazed at your story and the courage you have demonstrated to so many. I didn't reply because my spirit is questioning if I have enough courage as you to have so much determination and hope. So much FAITH and endurance. I have cried reading your stories many times. I was diagnosed on March 12 2026 with endometrial serous carcinoma p53. Been on Taxol 175 /Carbopatin 156 from April 30 to June 11, and the neuropathy was so debilitating, I asked for TAXOL to be reduced to 135 for the last 3 cycles. I'm now in the 2 week coasting period before the last cycle on August 13. Hardly anyone in the Chemo center of Perlmutter can get a vein even with a 24 baby needle. They fast pump Benadryl into the IV that creates a brain fog so bad I cannot even speak and this is the time I have a social worker come in to talk, and a line of nurses all sticking holes in my and not being successful. I have written a list of requests for August 13 after doing more research. Slowly infuse Benadryl over 30 minutes. No One can come in to interview me during this time as I cannot even think straight or talk. And I want a professional team on stand by who can locate a vein, have warm compresses and make sure I've drank a lot of water at least 2 hours before they begin the puncturing nightmares. I'm still suffering from peripheral neuropathy since July 23. I'm concerned nerve damage will be permanent but worse, that this endometrial HGSC p53 is waiting to return. I had a radical hysterectomy that removed a 2 inch tumor that didn't go through the wall. That was April 2. It's now August 1. I demanded an ultrasound and transvaginal ultrasound last week and the oncologist who wanted to wait until after the 6th round gave me a script for it. NO ASCITES in abdomen. I've got NO motility of digestive tract and went 7 days without a BM. Now the only way I can go is with lots of stool softeners and fluids. When you want to survive and want to live, I see there are many hardships to overcome and accept as a trade off. I've been praying for you ever since I met you on this forum. I was a Health Teacher in New York. I have so much admiration and love for you. <3

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Replies to "@jenelleseaman I want to thank you from the bottom of my heart for writing to me...."

@lindybowers It’s a comfort that you and @jenelleseaman are in contact with in one another. She is an inspiration to us all.

Your description of what you’ve been enduring brings me to say that I’m hopeful you will come out of all this on the other side of treatment. You said it so well—“When you want to survive and want to live, I see there are many hardships to overcome and accept as a tradeoff”. It’s a relief that we’ve found one another here on Mayo Clinic Connect and can provide support.

I would like to add that I am saying healing prayers for you. You are one strong woman who continues to advocate for herself.