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@pmrnew I was diagnosed April 2024. Started with 20 mg prednisone which worked like magic and brought my CRP and SED numbers back to normal. I was treated by my primary care doc as he had experience with PMR and no rheumatologist in my area. I stayed at 20 a month and then started tapering in 5 mg increments. All went well until I got down to 5 mg and had a big flare. Went back up to 10 mg and came down using a much slower taper until I got down to 3 mg - another big flare. At this point my doc referred me to a rheumatologist in another city, thinking I might need a biologic. It took a long time (several months) to get an appointment. In the meantime I read on this site about the slow taper method for use with low doses that I shared here. I discussed it with my doc and we agreed that I would try it, monitoring and adjusting the dosage myself, and just keeping him updated periodically on my progress until I could see the rheumatologist. By the time my appointment came I was doing well and at 3.5 mg - rheumatologist said I should stick with this taper schedule as it’s obviously working for me. Had new bloodwork recently and my CRP and SED levels were normal. I asked the rheumatologist if I could just stop the prednisone since I’m at such a low dose, and he said no - that I should follow it out to the end. I’m at .5 mg now - will stay here a week and then start the steps down to zero if all goes well. I give my primary care doc a progress update every time I get down by another mg. I wish you the best of luck with your taper. I never realized that these last few mg would be so challenging and was very surprised when I flared again (with high blood numbers) at 3 mg!

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Replies to "@pmrnew I was diagnosed April 2024. Started with 20 mg prednisone which worked like magic and..."

@cyndip wow, so you have been on pred over 2 years. When you tapered below 3mg and had a flare, that immediately reflected in CRP and ESR? Yes, so the last little bit, very slowly.