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Giant Cell Arteritis questions

Polymyalgia Rheumatica (PMR) | Last Active: 4 hours ago | Replies (31)

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Profile picture for clendenin @clendenin

I think as a patient of GCA, which I am as well, we are at risk of blindness. So the objective for treatment in my health plan is to avoid that at all costs. Prednisone is a mess on the body no matter what, but do ask your doctor directly these questions. You have very good questions. The unfortunate answer anytime I’ve pursued detailed questions about this drug or that, the answer seems the same: who knows, listen to your body and if it doesn’t feel ok or you are in pain, then let’s reconsider the dosage”. The risks (blindness) outweigh the side effects of the treatment. No way to get around the fact we share a very serious autoimmune without much of an operator’s manual. For me, the downsizing of prednisone equals being dope sick, so in the past, I’ve had to remove many if not all expectations for having any fun until my body adjusts. Rest, and time seem to be the only recipe for feeling better. I sure hope you do, and find answers with your health care provider!

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Replies to "I think as a patient of GCA, which I am as well, we are at risk..."

@clendenin Wow! Very well stated!! I've been dealing with GCA for only a year and HATE being on all the meds. It's already become a domino-effect...one medication causing another complication which needs to be treated with another medication, etc. etc. But like you, preserving my vision is top priority. All the best.