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SIBO due to ileocecal valve removal

Digestive Health | Last Active: 1 hour ago | Replies (11)

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4 years ago right colectomy: for Diverticular w/ acute inflammation.
Removed:
part of small intestine
consisting of the terminal ileum (due to Submucosal lipoma) cecum, appendix plus appx 10” of ascending colon and also 1 benign lymph
History of chronic & severe diverticulitis throughout entire life/colon including sigmoid colon, have a redundant colon with excessive coiling and very slow mobility Also have lipomas elsewhere .
Post surgery immediately suffer undiagnosed/untreated horrible bile acid diarrhea for a year - eventually prescribed Cholestyramine - which after long time use, eventually caused diarrhea & instead of controlling (never fully stopped any symptoms, at best better control) with this diagnosis i ate no dairy, no unhealthy fats or fried, low acidic, fermented foods, high fiber - often BRAT
- per GI “your body can correct BAM eventually” so I’ve stopped this med but still suffering with diarrhea (doesn’t seem to have bile), small soft (amounts) pencil this stools, incomplete & frequent- taking hours to fully evacuate. Bad Abdominal bloating, cramping, throbbing pain, spasms, gas and burping

Post surgery have I always also had SIBO? I don’t know and never had medical tests to confirm BAM and/or SIBO But GI just ordered. SIBO test - awaiting delivery. But after 3 days of herbal supplements for SIBO - I stopped. Either horrible “die off” symptoms that I can not possibly live or function with (still in bed today) or bad reaction ??
But if SIBO & desperately trying to be well I am now following a SIBO diet (which completely differs from BAM)
I eat extremely clean but welcome any advice & suggestion & help with that! Thank you
Great info about “gum” & carbs and precooked rice (eat often to control diarrhea) Also tecently told to avoid any wheat products with the words “Enriched & Fortified”
Really much your response, support and any advise or suggestions Sadly don’t feel I have the best GI doctor with the verycomplicated issues I have.

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Replies to "4 years ago right colectomy: for Diverticular w/ acute inflammation. Removed: part of small intestine consisting..."

@allioops
If it truly is a stubborn case of SIBO, you may want to consult a naturopathic doctor , specifically someone who is well versed in gut health
I’ve got a history of ulcerative colitis, which led to colon cancer requiring removal of cecum and illocecal valve, sigmoid, ovaries, appendix and multiple portions of colon and small bowel.
I never had SIBO, but did have diarrhea and feelings of not emptying, plus bad gas.
I think mine was ultimately solved when I required months of IV nutrition for bowel rest (this was to help heal my colon after multiple leaks and problems)

Fast forward 7 years, and my UC is in remission with meds, and I just started a peptide therapy to see if I can heal my gut lining and get rid of lingering inflammation, some of which is caused by the meds.
Often a GI will only look as far as RX meds and not try to identify the causes.
I do eat gluten free and light on dairy, and sadly have found that I have less symptoms of UC when I eat less fruits and vegetables
I think we are prone to a lifetime of gut issues, and I have many friends in the same situation. So many unknowns and each one of our bodies is different.