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Just An Update on HG Serous Ovarian Cancer
Gynecologic Cancers | Last Active: 7 hours ago | Replies (91)Comment receiving replies
I’ve had seven cycles of topotecan since February this year, so did a PET CT scan to see where things were up to. When I went to see the oncologist I already knew that I didn’t have to go ahead with the eighth cycle. I was hoping that it was because the scan had showed that the cancer was gone.
Unfortunately, the scan showed that the topotecan had stopped working. The cancers had grown both in size and avidity, and there are some new growths that my oncologist is concerned about.
The verdict is that I need to have a short break before I start the next chemotherapy treatment. I start gemcitabine in early September. So it’s back to square one.
I’m disappointed, but I still trust that God’s in control and is always working for my good, despite what the circumstances might be. Next weekend is my 16 year anniversary of when I was first diagnosed with the HGSOC! That is amazing! I firmly believe that is a result of the power of prayer.
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@jenelleseaman Is surgery an option? Seems cutting it out is better than chemo when possible. That's my thought anyway.
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@jenelleseaman I want to thank you from the bottom of my heart for writing to me. I spoke about you to my oncologist/surgeon and his cancer team. They were amazed at your story and the courage you have demonstrated to so many. I didn't reply because my spirit is questioning if I have enough courage as you to have so much determination and hope. So much FAITH and endurance. I have cried reading your stories many times. I was diagnosed on March 12 2026 with endometrial serous carcinoma p53. Been on Taxol 175 /Carbopatin 156 from April 30 to June 11, and the neuropathy was so debilitating, I asked for TAXOL to be reduced to 135 for the last 3 cycles. I'm now in the 2 week coasting period before the last cycle on August 13. Hardly anyone in the Chemo center of Perlmutter can get a vein even with a 24 baby needle. They fast pump Benadryl into the IV that creates a brain fog so bad I cannot even speak and this is the time I have a social worker come in to talk, and a line of nurses all sticking holes in my and not being successful. I have written a list of requests for August 13 after doing more research. Slowly infuse Benadryl over 30 minutes. No One can come in to interview me during this time as I cannot even think straight or talk. And I want a professional team on stand by who can locate a vein, have warm compresses and make sure I've drank a lot of water at least 2 hours before they begin the puncturing nightmares. I'm still suffering from peripheral neuropathy since July 23. I'm concerned nerve damage will be permanent but worse, that this endometrial HGSC p53 is waiting to return. I had a radical hysterectomy that removed a 2 inch tumor that didn't go through the wall. That was April 2. It's now August 1. I demanded an ultrasound and transvaginal ultrasound last week and the oncologist who wanted to wait until after the 6th round gave me a script for it. NO ASCITES in abdomen. I've got NO motility of digestive tract and went 7 days without a BM. Now the only way I can go is with lots of stool softeners and fluids. When you want to survive and want to live, I see there are many hardships to overcome and accept as a trade off. I've been praying for you ever since I met you on this forum. I was a Health Teacher in New York. I have so much admiration and love for you. <3