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Looking for a Sepsis Survivor's Support Group
Intensive Care (ICU) | Last Active: 12 hours ago | Replies (30)Comment receiving replies
@ew62 I got sepsis about 3 weeks after a spinal fusion with implementation (titanium rod & screws) it was a 5 hour operation and they almost lost me. I had been warned about getting a blood infection but not warned about becoming crazy. I had a fairly new boyfriend as a caregiver. Evidently I'd had a fever of 102° - 104° F for a couple of days but refused to go to the hospital. I finally went because the pain was very bad. From then on it gets fuzzy and it's a long story and kind of awful. I'm interested is talking or communicating with others who were partially delusional and feel the need to know what actually happened. I'm missing big pieces of my experience. I know it was traumatic and i want to know how i can help myself about this
Replies to "@ew62 I got sepsis about 3 weeks after a spinal fusion with implementation (titanium rod &..."
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@jann47
Welcome to Mayo Clinic Connect.
WOW! You went through A LOT. As if spinal fusion was not enough to go through, the sepsis really got to you!
I have posted some links below for you to check out, two of them are from right above your post and I just want to be sure you saw them.
The second link is especially interesting, as it has a link to the Sepsis Alliance group:
Sepsis Alliance https://www.sepsis.org/
When you responded to @ew62, it was from a post several years ago, and I do not know if they will get back to you.
Have you had a chance to read the posts in this discussion?
There is also a recognized trauma from just being in ICU, called PICS (Post Intensive Care Syndrome) that is something else to help identify where some of your feelings are coming from.
https://connect.mayoclinic.org/comment/1278075/
https://connect.mayoclinic.org/comment/1378557/
https://connect.mayoclinic.org/comment/876807/
What you have gone through is something that not everyone can identify with, so finding others who have is a blessing, because you are not alone. And just knowing that can help you so much.
How are you feeling now?
Are you taking good care of you?
Eating well, resting when tired?
Is your support person (newish boyfriend) still in the picture?