← Return to Having ileal conduit after radical cystectomy: What to expect?
DiscussionHaving ileal conduit after radical cystectomy: What to expect?
Bladder Cancer | Last Active: Aug 5 6:07pm | Replies (33)Comment receiving replies
Replies to "@141emp Did they not offer you a port? Just curious."
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@debbieanddale No and I was ok with that until the blot clots. At that point I was no evidence of disease on scans and Signatera. Signatera became positive again a year later and my treatment plan was 6 cycles of EVPembro. I asked for a port and my dr agreed. While the port made treatment easy , no one else liked to use it outside of the treatment center so it became a bit of a hassle for scans and ER visits. It’s with good reason, nurses need to be trained and infection is always a risk. Once I knew this I knew to remind schedulers I needed an appointment with at the vascular access unit prior to the scan or procedure . There was also the option of using an ultrasound. Unfortunately , there were a handful of nurses and anesthesia residents who thought they “ could find a good vein with blood return” . I just tell that type they have a choice of ultrasound or port , period!