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Non Specific Esophageal Motility Disorder Caused by Beta Blockers
Digestive Health | Last Active: Nov 27, 2021 | Replies (24)Comment receiving replies
@tryingtofindanswers Hi, thanks! I’m still struggling. Trying to find a new doctor that might be able to assist more, or at least be compassionate. I’ve lost 60+ lbs and all doctors tell me is that I have ineffective esophageal motility disorder and it can’t be treated. They tell me it’s “mild” and I need to learn to deal. I can’t really eat solids. My diet is crap! They even said nutritionists can’t help me ugh. So I am literally here on my own trying to figure out how to eat to stay nourished, hydrated and keep myself from going nuts.
Replies to "@tryingtofindanswers Hi, thanks! I’m still struggling. Trying to find a new doctor that might be able..."
Have you tried baby foods? Some are quite good. Expensive, tho.
What kinds of food can you eat? Have you tried exercises for the base of your tongue or throat? I thought it was kind of weird, but they have made a difference in my ability to swallow. A speech therapist gave me the exercises and gave me a lot of helpful information. I still have to be aware of how I prepare to swallow (the base of my tongue doesn't move normally) and how I swallow. Our magic bullet makes it possible to eat things.
Jim
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Thank you for checking in with us, @tryingtofindanswers. I am sorry to hear that you still do not have an answer to your problems. I encourage you to keep advocating for yourself.
Teresa