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Profile picture for laugsb1 @laugsb1

Hi. I was recently diagnosed with a 4.6 cm aortic root with a 4.0 cm ascending aorta via echo. CT scheduled for 3.5 months from now. I do not know how to behave, how I got here, or what my options really are. Serious medical stuff has not been part of my life until this (58 years old, 6’2”). I’m kind of petrified right now about open heart surgery. Any words of encouragement about the condition or surgery would be super helpful because I am a big baby!

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Replies to "Hi. I was recently diagnosed with a 4.6 cm aortic root with a 4.0 cm ascending..."

@laugsb1 as others have said, it is normal to feel anxious and worried about the diagnosis, but you know you have it and can monitor, plan and do something about it before (if ever) becomes an emergency, not everyone gets that opportunity.

With your body size, a 4.6 aneurysm (if size is confirmed with CT) may just get monitored for now. My recommendation is to find a cardiologist who is an expert in aortic diseases, not all of them are and it makes a big difference. The cardiologist will repeat CTs at intervals to determine growth rate, which is an important measure. He/she will also monitor and help you control your BP, which is one of the most critical variables.

You may also want to find the best cardiothoracic surgeon in a major hospital most accessible to you. The surgeon will answer all questions about the surgery, the risks in your particular case, periodical monitoring (may interface with cardiologist for that) and help you plan for any possibility of surgery.

Other than that, keep yourself healthy, you want your body at its best if you ever need surgery. Stay active, exercise but follow exercise restrictions, mainly avoid any exercise that leads you to hold your breath while exerting, like weight lifting, crunches, etc it is known that BP rises significantly during those seconds, and again high BP is the worst enemy of an aneurysm.

I had my surgery at 54, had a 5.2cm ascending aneurysm, I was in very good physical shape and my surgeon gave me >99% probability of an uneventful surgery, and that's how it went. I was out of the hospital in 5 days, back to work in 3 weeks. I was back at mildly intense work outs in 6 months, and full intensity in less than a year. Surgery is tough but bearable, the fitter you are the easier it gets. I live a normal, active life. Get checked every year by my cardiologist.

You will be fine

@laugsb1 I have an ascending aortic aneurysm found on a ct scan for calcium score. Also no other medical conditions. This ct showed 4.5 cm. My PCP ordered CT angiogram immediately and it measured 4.1. I felt like a ticking time bomb. I got in with a cardiovascular thoracic surgeon that specializes in aortic disease. Received great education, genetic testing and developed a plan of care. I am now being monitored with CT angiogram every 6 months. For you to wait 3.5 months for a CT seems very stressful. This group has been most helpful for me. The visit with the surgeon relieved my anxiety greatly. Although I did not have high blood pressure before diagnosis, my anxiety after finding the aneurysm made it high., I now take be meds to keep it down and so far so good. Not sure what type of Dr. is following you on this but I would suggest getting in with a cardiovascular aortic specialist to help develop a plan. Good luck. Open heart surgery sounds very scary but there are so many stories of success in this group, hope you find hope here.