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Giant Cell Arteritis questions
Polymyalgia Rheumatica (PMR) | Last Active: 2 hours ago | Replies (34)Comment receiving replies
@cathie1 When I was on 13 mg. of Prednisone, I got my first Actemra infusion. It took a couple of months before I started feeling better. I've been on it for 20 months. Rheumy is planning on tapering me off starting in Jan 2027. There's a study that shows, if you stop taking Actemra after 1 year, there's a 50% chance of relapse.
Replies to "@cathie1 When I was on 13 mg. of Prednisone, I got my first Actemra infusion. It..."
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@ropnrose Yes ,I totally agree.When I first experienced any symptoms it started as PMR but the Rheumatologist suspected GCA as well.Just slight sensitivity when any pressure was applied Omer the temple area.I was on Actemra infusions for one year and did well for about two years with no symptoms.This time I awoke one night with discomfort/ pain both temples and have been on Prednisone,significant doses since April.I have had four infusions of Actemra and due for the fifth in about ten days .Still symptomatic.Will definitely want to stay on Actemra for as long as needed.I think because it is a relatively new treatment for GCA much is being learned.