← Return to Any hopeful stage 4 storries

Discussion
christinadiersen50 avatar

Any hopeful stage 4 storries

Prostate Cancer | Last Active: 4 hours ago | Replies (36)

Comment receiving replies
Profile picture for madisonman0326 @madisonman0326

I was diagnosed after my annual check-up in February, 2025. As I recall, my primary physician said “If you want to have a PSA test, Medicare will cover it, but that’s up to you.” I was 67 years old at the time and, because no medical professional stressed the importance of having an annual PSA, I never had one. Turns out, my PSA was 67 (my age at the time) and my Gleason score was 4 + 5=9 but I was asymptomatic.
PET scan showed metastasis to the lymph nodes and bowel but no bone Mets.
A urology nurse advised my wife to start shopping for funeral homes - she even had a list of ones she recommended - and she said I should apply for a spot in hospice care. I was a little rattled by this, of course.
Up to that point, I had been an athlete and I figured that, if I survive this, my days of competing were over but that would be a small concession if treatment could prolong my life.
I went through some dark times when it took an extraordinary effort to workout but a physician friend assured me that things would get better and I should continue to train even when I didn’t feel like it.
Fifteen months later, while still taking oral anti-androgens and receiving Lupron infusions every three months, I was back on the cycling circuit and doing well so life continues unabated post diagnosis.

Jump to this post


Replies to "I was diagnosed after my annual check-up in February, 2025. As I recall, my primary physician..."

@madisonman0326 So many of us got the "start preparing to die" speech (or more empathetic versions thereof) with our de-novo stage 4 diagnosis. There are no guarantees, and it's important to remember that some people aren't still don't respond well to new treatment strategies, but the data they're using for life expectancy is OLD.

These days, you're not deluding yourself if you don't just give up after a stage-4 prostate cancer diagnosis. It is entirely reasonable to hope, and to keep imagining yourself living to old age. 10+ years ago, that might have been self-delusional, but not any more.

Keep on cycling!

@madisonman0326 "A urology nurse advised my wife to start shopping for funeral homes - she even had a list of ones she recommended - and she said I should apply for a spot in hospice care."

That is so stupid & irresponsible as to be almost comical. Almost like a car salesman telling you that you needed to replace your otherwise good car because it needed a major repair.