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DiscussionI need help! Just at a loss and confused. I'm a mystery!
Brain & Nervous System | Last Active: 16 hours ago | Replies (29)Comment receiving replies
Replies to "@cheyne such a beautiful written response. My neurologist says I have Huntingtons disease and normally you..."
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@mister1
Hi,
I wish I could die at times but this stupid brain I have won't let me give in, so I take the alternate approach and fight for every minute I can get. I have stopped breathing 3 times in the last 4 days and each time the brain realises it is killing itself while trying to protect the brain and kicks the respiratory system back into life. How many more times can I escape my fate, I don't know.
I just received word this morning I'm to be assessed for the long-awaited J tube insertion. It won't cure the myelin problem, but it will give me more time by working around the digestive problems that are causing the major issues and give me the vital nutrients I'm not getting presently.
Fingers crossed.
Cheers