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@dmr4ever Unfortunately, there is a two sides of the radiation situation. I have an aunt that has been going through breast cancer like me. She had chemo,radiation and took pills to suppress hormone 5 years. She said she would never do radiation again. She has permanent lung damage from radiation she had it done a few years ago. A girl from my cancer group had radiation she’s on oxygen from damage to her lungs that’s the reason I posted being worried about my other organs. Because I have another condition and I cannot take medications like everyone else to help whatever gets damaged. I have multiple chemical sensitivity, Alpha gal, which a lot of medication‘s flag for anaphylactic to treat the cancer. When I went to the appointment with the radiologist he showed me a drawing said they would pinpoint where the cancer is showed me a drawing with rings that go around the cancer about 5 rings he said each ring represents radiation, the radiation does spread out around where they’re treating but the further you go out the less the radiation so the first ring is the thickest it less and less till with each one of these rings then it stops, that’s with pinpointing machine at least that’s what they told me. My husband is getting radiation for prostate cancer . He developed symptoms after the 2nd treatment not able to urinate had to put him on pills so he could. I realize radiation is supposed to kill cancer cells but it still damages your immune system and other things if it didn’t affect anything, but cancer cells a person wouldn’t get super tired after having radiation? Unfortunately I am not able to have any chemo or take pills that everybody takes. I have a reoccurrence came back 3 years to the date. I had a doctor that told me the same thing one of the other members on here said stop reading get off the Internet and she left me with a positive margin!! now I’m devastated gone to my spine and I’ve had a 6 hour excruciating very serious surgery on my spine. Had to sign papers because I had a possibility of going blind, biting end of my tongue off, or breaking my teeth during the surgery,. I had problems with my eyes swelling for a while, but they’re OK. I had a great spine surgeon lucky with that anyway I believe my breast cancer surgeon seeded cancer under my arm when she cut the cancer out of my breast then went under my arm with same knife with cancer cells on it after cutting out two cancer tumors making a second cut under my arm where there was no cancer took out 7 lymph nodes, under where she took, the nodes out is exactly where it returned and then spread to my spine. I pray every day for a miracle God will heal my spine. my surgeon wanted me to have radiation on my spine he said he cut out as much as he could but he can’t remove the cells it was very radical surgery. Miracle he could cut cancer all the way around my spinal cord and roll it back. Removed 3 sections of lamina parts, 50% of my T5-6 vertebrae that collapsed, about 3 inches of my pedicle bone, 3V shaped bones with cancer, remove the faucet, soft tissue tumor, cancer all throughout spine,he said my bones were crumbling in his hand I had a Lot of cancer there. I had one little spot on T6 in my spine February 2024 the radiologist didn’t mention it in report so I didn’t know about it till almost a year later January 2025 when another radiologist put it in his report said it had been there since February 2024 by then it had gotten worse if I had known year earlier, I might be in a better situation right now. I have two rods, 10 screws, putty, magnet holding my spine together. I would love to think I could have that section radiated and not have problems with my other organs to give me more time. I’m a basket case I don’t know what to do! the doctors, hospital, radiologist, have made mistakes caused me to be where I am right now. so I’m a leery about trusting anyone in the medical field. I did have a really good feeling about the surgery he is very good person on top of a Great doctor and he did all he could for me removed all the cancer he could without paralyzing me

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@mawmaws

What a difficult journey you have to manage. I hope your care team can help you through it.

My main concern with advice people give in these types of support groups is the huge differences in our personal experiences. That’s why I always urge people to work with their care team because decisions should always be based on individual prognoses.

My experience with cancer treatment is very different. Chemo was extremely hard. I had pneumonia and neutropenia. I fell a couple of times and was injured. I had to stop chemo halfway through my second chemo drug due to toxicity. By the time I had surgery and radiation those experiences felt easy in comparison.

I can’t emphasize enough how important your personal diagnosis is in determining what treatments you choose. I changed oncologists because the first doctor pushed Verzenio and was rude when I had a horrible reaction to the drug. So I understand your reluctance to do anything that would be harmful.

Choosing to reject a specific treatment is so difficult. It’s good that you can share your experience here. But please don’t let comments by me or others cause you distress. There are as many different outcomes as there are people in treatment. So do whatever is best for you based on your self knowledge.