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surgeons who can opeate on mesentery
Neuroendocrine Tumors (NETs) | Last Active: 4 hours ago | Replies (25)Comment receiving replies
@taly I split time between Mesa and Payson. I do not know either surgeon. I have a PNET that spread primarily to my liver. Surgery isn't an option for me. I have a Net Specialist Oncologist. If they are both recommended for you, I would read their profiles on the Mayo Clinic website. See if you have a preference for one or the other. Here is a link to both of them:
https://www.mayoclinic.org/biographies/stucky-chee-chee-h-m-d/bio-20163956
https://www.mayoclinic.org/biographies/wasif-nabil-m-d/bio-20055266
Your dotatate scan will provide information necessary to determine your best options moving forward. So, you just found out about your NET a few weeks ago? How are you handling it so far?
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@tomrennie I've had a rollercoaster of emotions. It was a NP at the gastro practice where I had my colonoscopy who told me. It was found at the juncture of large and small intestine. I'm so glad I did some research. She said it was not going to be any problem at all because it's grade one, and that I would be well served to go to the local surgeon and oncologist (who are not NET specialists). I insisted on a referral to Mayo.
Thanks for the links. I called the Surg Onc dept and the nurse said Dr. Wasif does significantly more of the ileal NET surgeries, so I went with him. I'll see him on 8/14 and I guess get my Dotatate PET results then. It's a little nervewracking.
Have you been on this NET journey long? How are you doing with it all?