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3 months after ending big 3 after 18 months - Mac seems to be back
MAC & Bronchiectasis | Last Active: 17 hours ago | Replies (27)Comment receiving replies
@bayarea58 only 2 surgeons do this Robotic Lund resection in all of Manhattan,and I had the best ..I wasn’t able to get a good sputum test before the surgery and haven’t done one post surgery. My cavitary mass showed up on a chest x-ray as an incidental finding, and then on a CT scan and then on a pet scan. I did biopsies which did show positive for MTM disease. My surgeon, and I totally agree that the antibiotics cannot penetrate a cavitary mass to get through the white cell outer coverage to get to the infectious part in the middle of the cavity .
Of course, Many pulmonologist and infectious disease people have to go by the book and insist that you do antibiotics even though it’s useless.
My surgery was really easy. Recovery was really easy and it’s the best decision I ever made….i had my surgery in March ,…my 3 month post surgery CT was negative and I have no symptoms….i just walked a 20 min mile and I feel good ….and I’m old ! I did, however, lose a lot of weight from this disease and nobody put it together until I had a chest x-ray and found out what I had.
I went down to 84 pounds and now since the surgery I have gained 6 pounds and hoping for more .
Replies to "@bayarea58 only 2 surgeons do this Robotic Lund resection in all of Manhattan,and I had the..."
@visions63 in my case, my cavity (roughly 2 cm) did eventually close with antibiotics. It seems really hit or miss whether cavities close with antibiotics but certainly many do, so I myself agree with most specialists that trying antibiotics first makes sense for many. But when antibiotics are not getting one to convert their sputum, I think it’s important to reassess and look at all options. I know that my doctor at NJH takes the position that surgery is not a substitute for antibiotics, and requires antibiotics both before and after surgery. Also, many with cavities do sputum convert but don’t close cavities during treatment, and I have been told that is hard to interpret, that those cavities may close later, or never and yet the patient may remain sputum negative. Each of us has our own unique journey. So glad you had a positive experience with your surgery and are feeling so much better. That’s really what it is all about, isn’t it. Stay well!
@visions63 I am so happy for you that the surgery went well and you are feeling so much better. I am sure you will be successful with putting some weight on as you sound like a very determined individual. God bless!
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@visions63 my surgeon was Dr Robert Cerfolio at NYU ,he saved my life !