Several years ago, I was trying to go to the Mayo clinic and I even secured an appointment, but I was too unhealthy to go. So I wanted to go again and the person that routed me wasn’t very nice. They were not concerned about my surgical records or my brain scans. It seemed to be a focus on headache management, which I really don’t care about. That’s one of the things if I can afford it that I can get locally very easily. I’ve heard about people with their headaches burning out and I’ve had that happen twice. When I’m really concerned with is my vision and how to correct my remaining vision or slow it down. And where I live, I can’t get into a neuro ophthalmologist at this point I don’t care because forcing someone to give me care who doesn’t want to care about Patient is not going to serve me. One of my friends goes for something else at Mayo Clinic in Rochester and he says how great they treat him. Unfortunate I don’t have someone to take me in Rochester. I might be able to get to Arizona campus, but I don’t want to go for headaches because that’s something they can deal with where I live what I want to know is if there’s anyway to keep my remaining vision and I have a device problem that has not been looked into something went wrong. Went wrong with my surgery locally the surgeon was very inexperienced with it at all. I don’t know what to do because I can’t waste money going for headache management and I’d really like someone to help find out if there is a problem with my device because I don’t want to have a stroke. I end up in and out of the emergency room so much that they don’t want to see me. I’ve been routed to the neurosurgeon multiple times by a very special specialist I have to go to to the to the neural ophthalmologist in order to get care from the neurosurgery. But I have to have a specific finding called papiledma in order to get into the clinic. My eyes did have this finding but now the nerves are so destroyed that I can’t get the symptoms. So what happens as I get routed to have an OCT. If the OCT is negative, which it is, I can’t see the doctor. And then without having that finding, I can’t see the neurosurgeon. So it’s a closed loop. I end up in the emergency room and they tell me to go to Primary Care then Primary Care tells me to go to the emergency room. I’m wondering if there’s anyway I can get care that’s not just about headaches because I’m getting used to having headaches and I don’t care what I do care is about my general help not having a stroke because of the device that didn’t deploy and I care about my vision. I contacted barrow and they were completely cruel to me. They said that I wanted a quick fix and I was desperate and then I wanted surgery and no, I don’t want surgery. I’d rather have medication instead for the record. I love being on Diamox. I hate the kidney stones, but I like being on it. It feels really much better to be on it. And no, I’m not craving Surgery. I just want to get better. I’d rather not have surgery and no, I don’t want a quick fix. I just thought barrow was so cruel over the phone. I would never go there. They said that I might need cognitive behavioral eye therapy instead and I asked them how that could help a thinning optic nerve with prisms. They didn’t seem to know anything about anything and I’m so glad I didn’t bother going there. I would rather go to Mayo, but I want to make sure it counts. I don’t want to go there for headaches. I want to go there to find out if anything is wrong and if something‘s wrong, can we fix it with Diamox? Do I have to have surgery. How can we keep my vision. This is not a question. I can get where I live. It’s going to be hard to leave very hard to leave for care, but I need to know it would be worth it to leave for care I can’t go to Rochester because I don’t feel enough to fly, but I might be able to do it in Arizona. Is there any chance that they could work on My goals at Mayo ? Perhaps I just caught someone on a bad day because the other time they were really nice to me and so I just gave up and didn’t send any information because of the way I was treated. I put the information in the box and I don’t know what to do and does anyone know if I can pay to just send my brain scans and my optic nerve scans and my visual fields to Mayo Clinic in Arizona or Mayo Clinic in Rochester and just pay them to review my scans and see if they can see anything do a video visit before I came out I don’t mind doing that. I have original Medicare for insurance so if I could possibly get somewhere, it would pay most of it. Does anyone have any ideas? what I don’t want is to get over there and have them just focus on headaches. I want to prevent a stroke and I want to see if there’s a way to pervert preserve my remaining. I so regret having it locally but that’s what my family wanted because it was more convenient and I wanted to go to Mail and I know that this would not have happened so I wouldn’t have these consequences for going getting McDonald’s level care or 711 level care recently 711 like the convenience store. I feel like I got convenience level care where I live please don’t ask me where I live. I don’t wanna talk about it.