@sbgigi
Did you ask your Dr. to explain clearly why they decided on giving you 30 instead of 20 mg? Maybe it was the severity of your symptoms coming back? I would definitely ask. I always ask direct questions like that to get those answers from the doctor who has made those decisions so I don’t have to wonder. I have learned to advocate for myself over the decades of dealing with autoimmune diseases & a big part of that is learning as much as I can about my disease and about the treatments. And that includes asking questions.
I, too have a lot of bad side effects from steroids. They have been a lifesaver but now that I’m better from recent GCA/PMR firestorm, I’m tapering slowly off prednisone. I was getting symptoms back when going from 30mg. to 20 so my Rheumatologist added a weekly shot of Actemra & it is helping me already. I will be trying to reduce prednisone dose tomorrow & am hopeful I am still ok. I am staying in touch with my Rheumatologist during this process. He wanted me to let him know what symptoms are coming back at each reduced dose.
Have you asked your doctor if you could try one of the biologics to try to help you taper off steroids?