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Chris Gautier, Volunteer Mentor avatar

Which Seizure Trigger Is Your Hardest Battle?

Epilepsy & Seizures | Last Active: 1 day ago | Replies (78)
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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@louissc
Hi Louis,
I've not yet been to Singapore, but this is one of the places I want to visit some day. From your description, the weather at your place looks very similar to that in Rio de Janeiro, where it's very humid and warm, and it's impossible to live without air conditioning, especially during the summer season.
Thank you for sharing more about how your doctor ruled out PNES.
Knowing the cause of our epilepsy and seizures can bring some relief on one side, but anxiety on the other. This is how I felt when a specific MRI showed my mesial sclerosis in my left hippocampus. So, I'm very happy to know that you continue to be committed to staying positive!
Living one day at a time and in the present moment has helped me much at these times.
Going back to what started our conversation — is it still the music and radio ads that challenge you the most, has the heat and humidity taken over as your hardest trigger, or is it a mix of both?
Chris

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Replies to "@louissc Hi Louis, I've not yet been to Singapore, but this is one of the places..."
louissc | @louissc | 1 day ago

@santosha

Hi Chris,

I’m sure the difference between the weather of Rip de Janeiro & here is minimal. I did suspect heat to be a trigger once. However, I have no problem while exercising outdoors & sweating in the sun. Thus, it’s head scratching. It can’t possibly be the weather but I do feel that aura without the muscle convulsion happening while waiting for the cab to arrive while dressed up to go to work and it’s hot/humid outside.

I won’t be triggered by music or noise as much now. It’s when driving passed a familiar sight or building which may make me feel uncomfortable sometimes. Since those were familiar, they could have contributed to a sense of Déjà vu occasionally.

Things changed. As time passes, relationships will no doubt take its toll too especially others without this condition may think it’s some sort of flu condition which drugs will cure. It can get pretty tiring now putting a front up.

But then I guessed those who understand know this fight isn’t an easy one.

Cheers,
Louis

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