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I think in most cases, it should be “Hang in there, it gets tolerable”.
Don’t get me wrong, certain side effects improve dramatically over time like taste buds and ability to swallow in my case, but others you just have to get used to. Like the chronic dry mouth, lymphedema etc. for example. I am forever grateful for the treatment I received and the fact that I am still here one year out. I still have metastatic disease that I am dealing with and I am on Keytruda every 3 weeks. “Scanziety” is always an issue, but I have learned to deal with it through counseling, family and groups like this. I wish everyone the best and keep the faith.

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Replies to "I think in most cases, it should be “Hang in there, it gets tolerable”. Don’t get..."

@scottmcf1431, you are correct, the new normal is tough to live with. But the ability to live and grow older is a blessing despite the changes. I also have metastatic SCC, in my 15th year now since original surgery. Libtayo, which works via the same pathway as Keytruda has squelched my last metastasis which was to kidney and lymph nodes in 2020. Now 3 years off the immunotherapy and still no recurrence (knocking on wood). Keep your positive attitude and enjoy life each day. Wishing you wellness.