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Profile picture for lbholley @lbholley

I'm not sure where you are located, but I would be trying to get to a top hospital that can decypher all of this. MANY of your symptoms I have also, and was diagnosed with FND but I am not a doctor and would never want to put my diagnosis on you. If your doctor won't listen. Find another doctor. I had a Neurologist that would not listen and so I requested another one. If you have to have a referral to see a specialist, then research the doctors in your area and find one you want to see then take that name to your doctor and tell him/her that you want a referral. Unfortunately today we have to be our own advocate. It takes a lot of time and energy. It's frustrating, but it's the only option as far as I am concerned. I wish you the best and hope you can find some answers.

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Replies to "I'm not sure where you are located, but I would be trying to get to a..."

@lbholley

I'm really not by a "large academic hospital." I'm from Oklahoma so probably the closest thing would be like U Texas Southwetsern or MD Anderson in Houston. I got to the point when I was a kid I told my mom and dad I was done going to the doctors. I had it felt like a doctor appointment every week. I was drained. But as I've gotten older I wonder more and more what is wrong with me.