I hope you find what you need @panorman3, and everyone here. It's wonderful you're so active.
I was just dxd with a small bowel NET originating at the ileocecal valve 2 weeks ago. Grade 1, well differentiated is all I know now. I'll be traveling to Phx Mayo for the first time for my Dotatate PET/CT next week. I was assigned to Dr. Stuckey for surgery but our first consultation isn't until Sept 1.