@cathie1 When I was on 13 mg. of Prednisone, I got my first Actemra infusion. It took a couple of months before I started feeling better. I've been on it for 20 months. Rheumy is planning on tapering me off starting in Jan 2027. There's a study that shows, if you stop taking Actemra after 1 year, there's a 50% chance of relapse.

@cathie1 You need to realize that each of us is different and trying to measure yourself against others will most likely not get you where you want to be. Average or normal are simply terms that rarely apply when treating PMR/GCA or any other autoimmune problem. They have common traits but our bodies react differently. Best advice I can suggest is to ask your doctor what they are thinking would be the next 90 days for you if you are best case. Then ask where decision points are in that window. Slow and steady will help set realistic expectations. I wish you success.