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Anyone have Sjögren's with seronegative labs?
Autoimmune Diseases | Last Active: Oct 4 11:01am | Replies (68)Comment receiving replies
@saffronsass yes it is not uncommon for the Drs to say you do not have Sjogrens. Some tests come back negative.
I know I have it.
It is disappointing to know the amount of patients told they do not have it.
We are our best tool!!! Sometimes it gets hard to deal with but I always say someone out there is worse than me. Chin up if anyone has some new info share it in all ears!!!! 😀😀😀
Replies to "@saffronsass yes it is not uncommon for the Drs to say you do not have Sjogrens...."
@lynda12345
Just doing more research my favourite pastime ha!
Now this gets interesting
50 years ago at work I lost my sight for about 6 mins I had all kinds of tests with the exception of CT Scan of the head.
Saw a neurologist he said I had soft signs of MS
A year later I had Bells Palsy on the left side of my face.
Apparently there is a correlation with Sjogrens disease. (Affecting the nerves) Sjogrens disease may have been caused by bacteria or a DNA defect that allows the T cells to attack our healthy cells
Another symptom is dry salty scalp and loss of hair.
Don’t tie your hair back use a comb wash hair maybe once a week use a light oil
I found this out because my hair would not suds the salt was preventing it.
I know I go on but the more we know the better 😀
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@lynda12345
Great attitude we just need to teach health care workers and Drs how debilitating this Disease is. When I tell the Dr and they don’t know so it is up to us to educate them. The Lozide eye drop I just tried does not work makes everything worse 🙁
I read Metformen and Ozempic could help with our symptoms. I am currently trying Ozempic
Fingers crossed 😀