I was diagnosed w/GCA in July of 2025...confirmed via biopsy Nov. 2025. My dose of Prednisone has varied - up and down - for 12+ months. I did weekly Tyenne injections (6 in all) until manufacturer ran out (!!). I was on 20mg Prednisone until today when I contacted Rheumatologist about some on/off symptoms (jaw claudication) and what I thought could be another very bizarre symptom: bursts of pain in my right ear. She told me to double up Prednisone (to 40mg) and to let her know status of symptoms. Anyway...preserving my eyesight is paramount and whatever dose of steroids accomplishes that, is a risk I will take. In closing, I thought Actemra can take quite a while to kick in and Prednisone is still an important stopgap.