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← Return to sero negative sjogrens?
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Sjogrens is very hard to diagnose I have had it for the past 4years and it is getting worse. One of the problems is GPs do not recognize this disease at 70 oh it’s just old age well it is not when you wake up 4times a night put drops in swallow water which tells your brain you are awake you need to go and urinate not to mention arthritis in your hands and feet
And to put the cherry on top I have sleep apnea . So we have to be our own expert . I have tried nervous Rx eye drops no success. We have to be careful the cornea can get warm Down
So here’s my new regime point at night for the eyes elevated pillow sleep on my side(breathing) only a small sip of water (fool the brain)
Every day is a challenge by morning I can hardly wait to get up. Oh yes and throbbing headaches in the am caused by low oxygen producing more cO2 to the brain. I know I’m venting but when you tell your health professional they don’t understand how sleep deprived we are. Any ideas out there I would love to hear them
Replies to "Sjogrens is very hard to diagnose I have had it for the past 4years and it..."
@lynda12345 I live 8 hours away from specialists 🙁
Unfortunately
So I’m on my own
There are hospitals in Canada in Vancouver and
Toronto
Can I ask you what medication you use for your Sjogrens?
@lynda12345 I’ve recently been given Rx for dry eye which are prohibitively expensive so do not fill.
I ordered an OTC Miebo-like tear, Evotears, from the UK. At the suggestion of one of these posts I’ve just gotten OTC iVizia. It’s in individual vials. I keep it in the fridge. It has the viscosity of a liquid gel and feels glorious going on.
@lynda12345 I have had Sjögren’s ‘s so intense that I had to have two eye surgeries to remove thick growths due to severely dry eyes. I have had hand and finger pain just like RA. I took 3000 mg of Tylenol just to get by. I finally discovered flaxseed oil capsules-I get them at Costco-1200 mg. I take 2 per day. Now my inflammation is totally gone and I take no Tylenol! I am in remission but still need to use systane eye drops and eat slowly due to dryness. I also removed a gold bridge that had mercury underneath (amalgsm). 5 months later -still taking the flaxseed oil capsules, I awoke without pain!!!!
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@lynda12345
Are you able to see a rheumatologist? That is who I get my medication from.