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Visiting Mayo Clinic | Last Active: 1 day ago | Replies (13)
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@maeve115 thank you so much for your message and suggestion. I would have never thought of that. It’s hard to focus on my health when I have zero income. Can’t work, can’t get unemployment, short term disability expired and long term takes almost a year. I just don’t understand how we are supposed to manage this way.
It’s just so heavy. I truly appreciate your message, I will start looking into that now.
Wishing you peace and wellness
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@hopelessag
I sometimes think that we are are against-the-odds people. I am amazed how we find some solidarity and stamina to keep on advocating for ourselves in a generally worn down system.
Sometimes in addition to Palliative Care a hospital Social Worker can work with Palliative Care to help accompany a person through the hoops. Sometimes Palliative Care with the Social Worker can get different Doctor's offices to talk to each other, but I think sometimes it is even difficult for them to do so...
Sometimes I need to just take a "Cancer Free Day" where I escape and find a bit of rejuvenation by doing nothing or something special from a walk with the Rollator, sitting in the shade, eating ice cream, talking to a friend about Netflix and any thing that is a break and is relatively cost free.. And sometimes I just think of the NET community.
The Neuroendocrine Cancer Foundation has some solid resources, like a Help Line, Peer Coaches, and NET wellness one-on-one sessions. https://www.ncf.net/
Deeply hope you can have the support you require.