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PMR - What do you wish you had known . . .
Polymyalgia Rheumatica (PMR) | Last Active: Aug 13 8:45am | Replies (163)Comment receiving replies
@sbgigi
So sorry to hear this. I started 15 mg 7 weeks ago, with control of all symptoms, and 1 week into my taper. A comparison of our reactions is proof of the wild individuality of responses if any is needed--all my side-effects have been positive. It pains me to read your post. Damn.
May I ask what your dosage is?
Replies to "@sbgigi So sorry to hear this. I started 15 mg 7 weeks ago, with control of..."
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@p0rtia I was started on 20mg which mostly worked, but then almost immediately lowered to 15mg, when all PMR symptoms returned. Doc then moved me up to 30mg. No matter the level of Prednisone I have multiple life-changing side effects from the prednisone. At least as hard to live with as the acute phase of PMR - maybe worse! But my situation may be different as my Rheumy and I are certain I had the PMr for at least 6 months before the 'acute' flare when I couldn't even walk! So perhaps that's why I need such a high dose? Anyone else comment on this?