← Return to 3 months after ending big 3 after 18 months - Mac seems to be back

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Profile picture for Sue, Volunteer Mentor @sueinmn

@annasill Welcome to our group, we'll try to help you navigate this new issue. MAC is a rare infection, and many doctors have very little familiarity with it, which may be part of the reason you are not getting helpful answers.

Can you tell us a little more about when and how your were diagnosed, and what kind of doctor you are seeing?

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Replies to "@annasill Welcome to our group, we'll try to help you navigate this new issue. MAC is..."

@sueinmn I was diagnosed with MAC two years ago when they found nodules in my lungs. They took biopsies, and they determined it was Mac. I was referred to an Infectious disease doctor, and we were watching it when I began to get a series of pneumonia. I would get the infection and antibiotics would cure it. I am currently on Hizentra and my pulmonary doctor monitors the pneumonia which she says are caused by pseudomonas. Are they the same thing as MAC? I am having issues with my breathing, and from my past experience it seems like MAC. I don’t know who to call or really what to do. The symptoms are just exhaustion and catching my breath. I have had night sweats. But only once this past month. Has anyone had this happen to them, and if so what did they do? The exhaustion is interfering with my life