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Anyone taking Tagrisso for Lung Cancer?

Lung Cancer | Last Active: 4 days ago | Replies (171)

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Profile picture for kathleenhalligan59 @kathleenhalligan59

Thank you so much for your thoughts. The truth is I’m not really doing well on Tagrisso mycologist says we can reduce it to 40 mg because I have these infections on my toes and feet and now I’m on antibiotics which of course make me sick so I’m not sure what the path has but living like this is not living. I am constantly tied to my apartment. I was suffering from restless legs, but now I drink 96 ounces of water every day and that seems to have alleviated the problem. My hair is starting to grow back because I became very very thin in my hair and I it’s just starting to grow back after seven months on Tagrisso . I am losing a tremendous amount of weight and it’s not like I can’t spare it but it’s still dangerous for me to be 30 pounds in just two months but I’m truly trying@mamajite

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Replies to "Thank you so much for your thoughts. The truth is I’m not really doing well on..."

@kathleenhalligan59 I can really empathize. I also kept getting toe infections - and some severe skin rashes to the point my team wanted me to just take an antibiotic forever (which wasn't an acceptible option to me.) I've seen many women post on here that the full strength Tagrisso causes too many side effects. my oncologists have told me that the lower dose (40mg) isn't effective, but I'm skeptical and think this probably needs more study in women.

as far as (not) losing weight - I switched to a mostly vegan diet and that seemed to help. dairy in particular became an issue for me on Tagrisso. make sure your oncologist understands it's becoming too difficult for you and that you need more support from your team.

@kathleenhalligan59 i’m sorry to hear this. I’m on Tagrisso too, I was on 80 mg now I’m on 40. When I was on 80 mg my legs were all bruised. But it seems like I’m doing much better on the 40 I think you will too.