Here's my story. Looking forward to learning from each other.

Around 2007, I developed a persistent cough accompanied by a large amount of sputum. I was misdiagnosed for about two years until a doctor decided to check my IgE levels, which were off the charts. This was followed by a bronchoscopy, which confirmed a diagnosis of Allergic Bronchopulmonary Aspergillosis (ABPA).

Since then, I have experienced several years of relative calm, punctuated by occasional flare-ups. These flare-ups are typically treated with a round of steroids, antibiotics, and sometimes antifungal medication. One exacerbation around 2017 was severe enough to require another bronchoscopy, which reconfirmed the ABPA.

We monitor my IgE levels several times a year. While my IgE is still considered very high by medical standards, it is relatively low for me. In recent years, I have become more concerned with my associated bronchiectasis and occasional hemoptysis events. I am currently in the application process for NJH to determine how to best manage my condition. My major concern is the hemoptysis episodes. It makes daily life much more difficult when you never know if you will suddenly need an emergency room nearby.