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Profile picture for linda90 @linda90

I just have a question to others who had head and neck cancer treatment for tonsil cancer. I was stage 3. I had 5 chemotherapy treatments and 35 radiation therapy. I went to CT scan and MRI but were all clear. My biggest concern is that I didn’t get my weight back until today when I finished treatment last year October. I’m now stressed 😰 is there anything wrong again? I had blood tests done and they were negative

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Replies to "I just have a question to others who had head and neck cancer treatment for tonsil..."

@linda90 I think you must be doing great! I went through treatment in 2012 and have never gotten my weight back to what it was. I was skinny then and even more so now. I constantly work to hold my weight where it is at 15 lbs below my presurgery weight. I spent over 2 years on Libtayo, an immunotherapy and it knocked out my appetite, food just doesn't taste right although I've been off it for 3 years. I have metastatic SCC which began in my external ear canal and have had 4 metastases over the years since 2012 so my weight likely is due to continued disease, but so far over 4 years of no evidence of disease. I would thing returning to your normal weight after 9 months is success.

@linda90
I too have had clear mri . Pet can and blood tests . So , far I am clear . So , that is good. It has been 2 years of recovering the side effects from radiation . Being clear is a step in the right direction. I just need to keep tolerating these days of nasty sickness from the radiation. Take having clean results as a positive . Easy to say but hard to embrace.
I wish the best for you !