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Is long-term seizure freedom possible without lifelong medication?
Epilepsy & Seizures | Last Active: Aug 10 6:43am | Replies (26)Comment receiving replies
@kb2014
I have been told I need a LTL due to sclerosis from bacterial meningitis when I was 10 months old; I’m much older now and have been having seizures for years. Do you mind sharing more with me about your surgery ..ie surgeon, hospital, recovery? I’m so scared. So glad you are doing well.
Replies to "@kb2014 I have been told I need a LTL due to sclerosis from bacterial meningitis when..."
@csue1
Hi Cindy,
Good to hear from you again. I remember from our messages that the seizures came back after your LITT surgical procedure, and I know how much that must weigh on you as you're looking at another decision.
A left temporal lobectomy is a big step, and wanting to go in with your eyes open makes complete sense. Did you end up going through with the SEEG your team had recommended?
Wishing you all the best as you work through this 💜.
Chris
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@csue1 It was catastrophic illness. I was septic in multi organ failure on a vent in a medically induced coma. Had dialysis. I experienced cardiopulmonary arrest so a rapid response team was called to revive me. I am a retired nurse. Was RN..I lost all my memory all my medical kmowledge ability to talk walk..I was hospitalized for 30 days then entered nursing home in wheel chair. 3 weeks later I walked out with a cane to independent living. My bacterial meningitis was caused by chronic sinusitis. I have learned to talk walk again. I drive legally. I relearhec medical knowledge plus new research about neuroscience neuroplasticity. I have ptsd from this..I remarried moved out of my life long home state to NM. I can say now this was a life changing event that was needed..
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