@hopelessag, I am so sorry to read everything you’ve been through. It sounds incredibly exhausting and discouraging to have so many serious health events while still not having clear answers.

I wanted to mention that a denied appointment doesn’t necessarily mean you have reached the end of the road. Sometimes appointments are declined because the needed records are incomplete, the requested specialty isn’t the best fit, or Mayo believes another approach is more appropriate based on the information they reviewed.

If it were me, I would contact the appointment office and ask whether they can explain the reason for the denial and whether there are additional records, testing, or a different specialty referral that might change the decision. Your current physicians may also be able to help coordinate another opinion at a large medical center that specializes in complex cases.

In the meantime, you’re among people here who understand what it’s like to live with uncertainty. While we can’t diagnose, we can listen and share experiences. I am so glad you are here. Welcome! Has one physician, such as your primary care doctor or another specialist been able to help coordinate all of your care, or are all of these specialists working separately?