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← Return to Remicade usage for untreatable microscopic colitis
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Remicade usage for untreatable microscopic colitis
Inflammatory Bowel Disease (IBD) | Last Active: Aug 6 8:20am | Replies (9)Comment receiving replies
I also have microscopic colitis but in spite of relapsing twice and now taking Budesonide as a maintenance drug, it has been a life saver.
But for six years I also have taken Remicade for rheumatoid Arthritis (RA). And it too has been a lifesaver. I have zero side effects from
It.
Replies to "I also have microscopic colitis but in spite of relapsing twice and now taking Budesonide as..."
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@pb50 I was on budesonide for 15 years. I still had public accidents once every 1-2 months, bloating, thinning skin, bruising and many other side effects. My last bone density test showing lower back bone thinning was the last straw as some research shows a possible link. I had my GI wean me off. He didn't instruct me correctly and I went into adrenal crisis and could have died. It was a horrific experience. He then instructed me to see an endocrinologist to wean off. It took 6 months. I am sharing this because if you ever decide to wean off due to side effects, make sure you do it the right way.