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Negative NavDx Pre Treatment HPV16 Squamous Cell Cervical Lymph Node
Head & Neck Cancer | Last Active: 6 hours ago | Replies (23)Comment receiving replies
@maryannecrawford
I am in a similar situation. I was dx with left SCC peritonsilar cancer. Unfortunately, my PCP let it go for months before he pulled the trigger and ordered a ct scan. It was found as stage 3. I went through 7 weeks of weekly chemo and daily radiation. I was miserable recovering but just had my 3 month PET scan follow up. I have a SUV score of 9 and still have significant pain in the left jaw, teeth tonsils area and it radiates to my left ear. I am at AU as well. My NAVDx is negative right now which makes my chemo doc think I am cancer free. I read data suggests an SUV score of 9 is almost always cancer. I have no second opinion just yet but will see a surgeon this week. Do you have any advice? Should I go to Mayo?
Replies to "@maryannecrawford I am in a similar situation. I was dx with left SCC peritonsilar cancer. Unfortunately,..."
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I am so sorry I just saw this post as I only check this on Sundays. There most important thing is your timeline. We just made it on ours and that is stressful. I would suggest you call Mayo to see if you qualify and research your options. Only you can decide what is best for you as concerns getting the second opinion at Mayo. Our decision was easy because we are originally from Minnesota so we could stay with family between visits and surgery. We also had the means and insurance to do so. In the end they concurred with our AU team so we returned to AU for treatment. I wish you the best on your journey. Again sorry I just saw this today. I will try to check more frequently.