← Return to My experience after craniotomy to remove a meningioma

Discussion
lovestocook avatar

My experience after craniotomy to remove a meningioma

Brain Tumor | Last Active: 13 hours ago | Replies (62)
Comment receiving replies
Profile picture for Colleen Young, Connect Director @colleenyoung

@loriq, it helps to hear from someone who has been there. Looking back to your surgery 2 years ago, is there anything you wish you had known to help you prepare? In other words, what tips would you offer a friend preparing for the same surgery?

Jump to this post

Replies to "@loriq, it helps to hear from someone who has been there. Looking back to your surgery..."
loriq | @loriq | Jul 27 10:46pm

@colleenyoung

Colleen,

I found it important to work hard to get yourself back “normal” as quick as possible. I was in the hospital for 3 days. I brought a bag with comforts from home. (Soft blanket/throw, grippy sock (more stylish than hospital issued), chap stick, my own soft pjs. These things made me feel more comfortable/like myself. (Especially the pajamas). I changed into those the second day. I truly believe it helped me feel like myself faster and move on.
You will sleep a lot! Don’t fight it or rush it. Take the time for you.(especially once you get home.)

Jot down questions for your care team when you think of them., so you can get them answered either while you are still in the hospital or later after you’re home (before your 1 year check-up.)

Biggest thing I found was to remain positive.

I agree, it helps to talk with someone who has been through it. I myself wish I had knew this forum existed 2years ago.

Feel free to reach out to me here as things progress.

Wish you the best.

VIEW AND REPLY