@chip13 I understand about the prednisone, it is definitely a struggle with weight and the dehydration too.
I did try hydroxychloroquine early on, but it caused me to have rashes.
Ibuprofen also triggers my vasculitis rashes, so I can only use Tylenol for my pain, so that is why I asked to try the Low Dose Naltrexone. It has helped a good amount.
Now if I can just taper off the steroids, but every time I get down to 5mg I start having problems again.
Praying they figure out the rashes on your hands/fingers. I am sure those are terribly uncomfortable.