@janetgraham You are so right that each person must decide to do - without feeling pressured to choose one thing over the other - what they wish to do.

I didn’t do chemoradiation which I gather is a targeted treatment on tumours. Instead I did major surgery including a colon resection. I did then agree with my oncologist’s recommendation to do 6 months of fortnightly Folfiri and Avastin with thev48 hour take home bottle to mop up any undetected cancer cells not showing up on my PET-CT scans (with contrast).

I chose Folfiri over Folfox - less chance of neuropathy. It wasn’t pleasant at all, some very bad days, but generally ok for me. Everyone experiences chemo differently.

My oncologist wanted me to go onto maintenance chemo after that. I meant to have a very short break as I had had enough and couldn’t face any more treatment immediately. Instead I didn’t go back on treatment and when I got cold feet and queried going back on the window had closed. I’ve been NED since mid 2022 and in August it will be 5 years from diagnosis. I have had regular surveillance blood tests and PET-CT scans (with contrast) since 2022. They started off 3 monthly then 6 monthly. Next year if my next scans and blood tests are still good I’ll go to 12 monthly scans with 6 monthly bloods.

@girafe It’s difficult deciding what to do and you can only do what you think is best for you whatever the end result is ❤️‍🩹