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PMR - What do you wish you had known . . .
Polymyalgia Rheumatica (PMR) | Last Active: Aug 13 8:45am | Replies (163)Comment receiving replies
@jabrown0407
I have never heard of a pain management doctor caring for PMR either. As a matter of fact I go to my pain doctor for another issue and he said he does not treat inflammation Ra related. I was prescribed Rinvoq and it was making me feel worse. After three months on it I went to a different doctor and was told rinvoq does not treat PMR. It will treat GCA which I have both. I was a healthy 60 year old back in Covid days but after I got the covid vaccine I been going down hill . Extremely high inflammation markers and vertigo.
So anyone who is prescribed rinvoq for PMR ask your doctor because my second doctor said no it does not treat PMR.
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@tweet Rinvoq is not FDA approved for PMR, mainly because the studies have not been done. I know it is used off-label for PMR treatments. It is a JAK inhibitor and functions differently than the FDA approved IL-6 inhibitors. I suspect you are possibly reacting to one or more of the chemicals that Rinvoq is compounded with rather than the drug itself.
I can take the Brand form of my blood pressure drug but the generic causes my BP to go up into stroke territory, like 250/130. I have an appointment later this Fall to be tested for drug related sensitivities. It is a reasonably new subspeciality of an allergist and only a few hundred doctors in the US focus on it.