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Anyone dealing with Dystonia?

Brain & Nervous System | Last Active: Feb 14, 2023 | Replies (44)

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@hopeful33250

Hello @sadnancy

I am sorry to hear of the difficulty you are having getting treatment for your abdominal dystonia. This sounds very difficult when I think of the pain, spasms, and difficulty breathing. I can understand that you might want to forgo further Botox injections due to the pain/pressure of the ultrasound equipment.

You also mentioned that you have Parkinson's. I would like to invite you to join the PD discussion group here on Connect. Here is the link, https://connect.mayoclinic.org/group/parkinsons-disease/?pg=6 to that discussion.

On Mayo Clinic's website, there is also information on dystonia. Here is a link to that information, https://connect.mayoclinic.org/group/parkinsons-disease/?pg=6.

While there doesn't appear to be a cure for dystonia, is there any physical therapy that might help you with the dystonia symptoms?

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Replies to "Hello @sadnancy I am sorry to hear of the difficulty you are having getting treatment for..."

I have found any movement helps especially on toes rather than flat foot. For some reason running or dancing on tip toe works. Walking is great but I must be careful cause I can trip. I measured my foot drop so I must concentrate to make the right foot lift a bit higher. I forgot the other night and wow got a black and blue great toe.